January 14, 2012 1 Comment
One on my many blessings is getting to know families from all over the World. At last count my patients come from 42 different countries. This is from a mother of a child treated at EmCell at the end of November 2011. I am inserting it here unedited, except where you see italics. Those are my additions for the sake of understanding. The family is from Serbia and their English is much, much better than my Serbian – which is zero. They have done everything to help their son imaginable and he made lots of progress in many areas except language. As you will read, he had next to no useful expressive language (verbally) prior to stem cell therapy. Within a few weeks he developed expressive language in sentences. I spoke to another family who know the boy and they are shocked by the changes in the last few weeks. In order for this to have happened this child had to have the language in his head, but the expression of the words was blocked by some interfering substance. Neuronal stem cells have not had time in my estimate – to enter the brain – create neurocircuitsry – form language connects from nothing – and then generate speech. All of this family’s hard work at therapy – ABA – and biomedical interventions had to create the language in his mind – but it was locked in and couldn’t be expressed.
This is by no means an unexpected problem with autism. Thanks to various forms of facilitated and electronic means – children with autism are telling us they are present but unable to connect to us with spoken words. But more on that after the comments from this mother from Serbia.
Dear Dr Bradstreet,
We finish with stem cell therapy 30 of November and I saw changes in my son’s spontaneous speech…for example….I yelled at him because he refused to listen to me when we learn (do our ABA lessons) and then he suddenly put fingers on his ears and said ‘Momy yell…yell….He wanted to say’ I cant hear you Momy…..I was thrilled!!! I ask him whose mother is Petrisha……whose father is Vlado….so he was bored ….and he answer me no more about family!!!! Before the (stem cell) therapy he had no spontaneous responses….(now) he speaks in sentences…answer in sentences….I ask him…Dusko are we going to learn(Because I do ABA 4 HOURS A DAY) and he answer “No because I want to play with Petra” (Petra is his sister) But he has problem with behavior……..he is more hiper than it was..before therapy…he still has stimming with hands and his voice….he start again to be out off control when we go out he is crying and crying when we dont want to buy him a favorit toy…..he start again to have tantrums….once when he was with his daddy in plane he repeated all the time…”I want to go to play with Sarah’s train”…..Sarah is his friend who has train that he like so much….and daddy couldnt make him stop……
Clearly we are a long way from finishing this child’s recovery process and stem cells are not magical. But this boy found his voice with stem cells and now other things are changing in his body and he is still learning how to self-regulate. He has struggled with hyperactivity and OCD type of behaviors for several years so these are not new symptoms. We are removing much of his medications and supplements to let his body adjust to the stem cells and will make further adjustments over time as well. Hopefully these other symptoms will be under control soon.
Elizabeth Bonker is another example of children letting us know they are not lost. I have had a blessing to get to know her over the last several years and her book (written with her mother) is a stirring reminder of why we can never give up on our children. You need to read this one. I AM IN HERE — I can just hear the internal language of this child screaming to out to be heard.
On this blog I have referenced the story of a 53 Italian woman that seeming awoke after she received and anti-TNF alpha medication. I truly believe TNF alpha may represent our most important adversary in recovery. I am posting it again to remind you about the story mentioned on several blogs from last year.