Contrasting Stem Cell Options in Autism
August 20, 2012 5 Comments
Picture: Neuronal (brain) Stem Cells
I’ve written a lot about our possible stem cell options on this blog, for Autism Science Digest and even chapters in scientific books, but nothing contrasts and compares our choices like the real world experiences of our children.
The young man I will present to you next is currently 12 years old. He had a prior history of autoantibodies to his blood vessels and had proven to be only slowly responsive to a wide variety of therapies when it came to spontaneous language.
In September of 2011 he had autologous (his own) stem cells harvested from his adipose and re-implanted in a clinic in the Dominican Republic. This did seem to help his GI issues and calm his food allergies. It did not result in changes in his language.
After his stem cell implant in the DR, I suggested we measure nagalase activity (viral protein marker) and it cam back elevated. We started GcMAF to prepare his body for a second round of stem cells. However, after his first course, his parents heard a lecture of mine on Fetal Stem Cells and the differences they presented over adipose (fat) derived stem cells.
They elected to pursue stem cells at EmCell in Ukraine. My logic was simply this; fetal stem cells create the growth factors and signals a child’s existing stem cells (living in his own brain) need to activate and then to potentially repair his brain.
The following email came from the child’s mother about 3 weeks after fetal stem cells were transplanted at the EmCell center in Kiev. After reading this, if you are interested in more information please contact my office and we can find time to discuss this further.
FROM HIS MOTHER
i contemplated on waiting for “more remarkable” improvements before posting my first update but a lot you have emailed and called….. so i thought to myself, these may be small improvements, but to other parents who have severely autistic children, these are major feats for them. some of you are on your way to EmCell treatments for your kiddos to so here you go!
1. He was able to tolerate sightseeing for hours and hours. after 2 days of Stem Cells (SC), we had time on the 3rd day to walk around kiev. matt walked a total of 3.5 km in a span for 5 hours. i couldn’t walk back another 3.5 km so we grabbed a cab back to our hotel. even at disneyland, we would have to get him a jogger stroller because he doesn’t tolerate walking for a long period of time.
2. in madrid, on our first night, our friend served jamon iberico (very thin sliced cured ham). obviously this is room temperature. for the first time ever, he didn’t request for microwave (his food has to be steaming hot and drinks have to ice cold) and ate a lot (and i mean a lot!) considering this is the first time he’s seen this. My son doesn’t eat food that he’s not familiar with, more so that it’s not hot. but he did!
we had 2 full days in madrid and would leave at 12:30pm, get to the restaurant for lunch 2:30-5:30, sightseeing for another 3 hours, dinner at restaurant 8:30-11:30 and get back to our friend’s place past midnight. the temperature here was 108 deg, matt is able to sit for 3 hours of lunch without his ipad (no wifi) and still walk for sightseeing under the heat! then sit for another 3 hours at the restaurant for dinner, by 10:30, he’d be all yawning but was game enough to sit until dinner is done by 11:30. he wasn’t tired or anything, i was tired because of the extreme heat and humidity. any child that will sit down for a 3 hour lunch or dinner would be bored to tears but not matt! except for a few whinings here and there but redirectable, he was really well behaved! and ate foods that he’s never had in america!
3. the whole week this week, he started cooking camp monday and went back to school on tuesday (which was his 12th birthday as well) morning and continued cooking camp in the afternoon. his whole demeanor has been happy in general. his academic performance at home with his lovaas therapist for 2 hours at home has been well, he is much, much faster in finishing up his math and comprehension worksheets without any whinings (okay, so his sched mon-fri 9-12 school, 1-4 cooking camp, 5:30-7:30 lovaas therapy at home) considering he’s had a whole day of activities.
4. yesterday morning in bed, dad was tickling him. he normally would say no tickle, i don’t want tickle. i was surprised when i heard him say “i don’t want TO BE tickled” the grammar and sentence structure was just perfect! i had to say what? and he repeated it, exactly the same. and then he said, “i want to blanket”. i corrected him by saying i want to USE blanket. he then points to the folded blanket above my head and says again, “i want TWO blanket” meaning he wants the 2nd blanket over the blanket he already has! he said it right and mom was wrong!
5. yesterday, he finished his stewed eggplant. a first! it kinda looked yucky to me….. but he finished everything! and he went to the park with his respite aid yesterday from 11-2 in the sweltering heat of 100 degress! his aid said he enjoyed playing on the swings, slides, he has never enjoyed going to the park. all he wants to do during weekends is go to the mall or cvs or target and go to the shampoo/lotion section to smell, smell, smell.
6. today, we had lunch at my uncle’s thai bbq restaurant. so all the food is already on the big table (buffet style) and everybody has started eating. he kinda looked like he was waiting for something, and he got his plate and sat by the table where all the food was in front of him. everybody was already eating and i guess since his favorite (and the only dish he would eat there) was still missing, my uncle jimmy (his grand uncle) asked him, what are you waiting for? he actually responds by saying “garlic short ribs”, i was surprised. coz he never responds to questions asked of him other than myself, yaya, dad or his therapists/teachers.
and normally too, once the garlic short ribs is served, he will NOT, ABSOLUTELY NOT, share with anyone else. if anyone gets a piece, he will get mad and start whining. well, today, i told him to get only 2 pieces and put the dish in the middle together with the rest of the dishes. he was fine. i told everyone to get, and people were asking maybe he’ll get mad and throw a fit. i asked him gently if it’s okay for other people to get, he said yes. and it was really fine! and he also ate another new dish.
7. lastly, we went malling today with my sister, we didn’t take him to bath and body works or victoria’s secret, he asked but we didn’t. and he was totally fine….. just so you guys understand, my son has a fixation with smelling. so a trip to the mall is not complete without going to those 2 stores. he was totally okay hanging out with us while we walked around for 3 hours.
so this is it for now. i really hope to share “miraculous” improvements soon. i know i have to patient, the EmCell doctors told us to wait 2-3 months to see the full effects of the stem cells, to give them time to grow.
i hope you all can continue to pray for his miraculous progress and hopefully on my next update, i will have “remarkable improvements” to share!
as always, i have to Thank God, for this opportunity for my son. and to put my trust in God that He will heal my boy, in His time, in His way, and according to His plan! I have to be faithful – AND LEAVE THE RESULTS WITH GOD.
P.S. i just have to add this, i was tucking him in bed just now, and he asks to watch cooking. so i turn on the tv, etc, etc. i put the blanket over him, and we have this conversation:
him: i want massage please
him: head please (he puts his hands on his head)
mom: okay (i put my hands on his head)
him: healing, go back ukraine, healing. doctors, healing. autism be okay. jesus heal autism
mom: wow matt! yes, you will be okay
him: go back fabio hotel (our friend’s place in madrid, fabio is the son’s name, he thought we stayed in a hotel)
this whole exchange was spontaneous, no coaching, so out of the blue.
all i can say is praise God! more stories to share in Jesus’ name!